Sitting Shadow

Sitting Shadow is the zebra(this is what a person with EDS is called) of the family.  Although he prefers to be called a Zebra Unicorn.  He has had a bit of a rocky start and admittedly when he was born we had no idea the perfectly imperfect journey his road would leads us on.
He  is 10 years old and in many ways wise for his age.  He loves theater, scary movies, being a pirate or a nutcracker (anyone with a sword will do), stage combat, musical theater, ballet, lyrical, minecraft, traveling, photography, video taping himself, journaling and writing with a quill pen.
There isn’t much he isn’t up for.  Until he isn’t.  It is at these times we are all thankful for the times he can do all that he can do.  Some days his body just doesn’t work the way it should.  Unfortunately this is his normal.  He is an inspiring young man and we are grateful to have him.  He is our Inspiration.